‘No research about us, without us’ is Deafness Forum Australia’s statement on citizen and community involvement in health, disability and medical research.
Updated and launched to mark World Hearing Day in 2025, this landmark statement explains the significance of citizen involvement, details its benefits to the research process, explores various levels and types of involvement, and addresses implementation challenges. Its purpose is to enhance our understanding and application of ethical, inclusive research practices, ensuring that our approach remains relevant and effective in engaging citizens in the research process.
‘No research about us, without us’ is a public document gifted to organisations and researchers worldwide to promote citizen participation in research.
- “It is a really helpful resource to guide our work with consumers.” Prof Bamini Gopinath, Cochlear Chair in Hearing and Health and Professor, Macquarie University Hearing.
- “This is well received, with thanks. Sure we are learning some new things. Keep up the good work.” Nalubwama Mastulah, Uganda Federation of the Hard of Hearing and member of the World Health Organization’s World Hearing Forum.
- “This paper is much appreciated.” Phillip Nakad, Operations Manager, National Acoustic Laboratories, Macquarie University.
- “Congratulations on this important work that will be of great value to the research community.” Dr. Shelly Chadha, technical lead for Ear and Hearing Care at the World Health Organization (WHO).
Read and download ‘No research about us, without us’