‘No research about us, without us’ is our statement on citizen and community involvement in health, disability and medical research in Australasia.
It articulates the significance of this involvement, details its benefits to the research process, explores various levels and types of involvement, and addresses several implementation challenges.
Recognising the evolving landscape of health, disability and medical research, this document is an enduring policy statement that will continue to integrate insights from contemporary research.
Why does it matter to us?
Ethical and impactful research cannot happen in a vacuum.
When research relates to a particular community group, it is vital that the diverse experiences and needs of this group are accurately represented in that research through direct citizen engagement across the research process.
In advocating for our constituents, we ensure that the research is not only ethical and impactful, but also accurately tailored to improve the quality of life and accessibility of those we represent.